Disease-specific resources Alliance of Genetic Support Groups medhlp.netusa.net/www/agsg.htm The AGSG helps individuals and families with genetic disorders. A toll-free helpline is available for consumers and professionals looking for genetic services or support groups. Amazon.com www.amazon.com This online bookseller allows viewers to search by keyword to learn what books are available on a specific disease or other area of interest. Ask a Health Expert www.columbia.edu/cu/healthwise/alice.html A health question and answer service provided by Columbia University. Breast Cancer Information Clearinghouse nysernet.org/bcic This site provides toll-free information hotlines, regional support groups, Q & A and other information for patients, families and health care professionals concerned about breast cancer. Maintained by the New York State Education and Research Network. Clinical Genetic Centers www.kumc.edu/gec/prof/genecntr.html Provides a linked listing of genetic centers, clinics and departments by region, with links to other potential information sources, such as genetic professional societies and universities with genetic programs. Community Breast Health Project www-med.stanford.edu/CBHP The Community Breast Health Project is grass-roots, patient-driven clearinghouse for information about breast cancer. It provides support and volunteer opportunities for breast cancer survivors and friends dedicated to helping others with the disease, and serves as an educational resource and a community center for people who are concerned about breast cancer and breast health. Council of Regional Networks for Genetic Services (CORN) www.cc.emory.edu/PEDIATRICS/corn/corn.htm A national starting point for information about local and regional genetics services. Genetic Syndrome Support Groups Online (and other health-related Web sites) members.aol.com/dnacutter/sgroup.htm Comprehensive linked alphabetical index of online support groups. Great Lakes Regional Genetics Group (GLARGG) www.waisman.wisc.edu/glargg This regional support group for people dealing with genetic diseases offers booklets for order and a comprehensive video lending library. Statewide resource directories. Mountain States Regional Genetic Services Network www.ahsc.arizona.edu/~msrgsn/msrgsnhp.htm The Web site for this regional genetic support network provides resources for geneticists, health care practitioners, patients, families and their caregivers. Features an online newsletter and resource directory. National Association of Breast Cancer Organizations www.nabco.org A starting place to find local or regional breast cancer support groups. National Cancer Institute's Online Cancer Information cancernet.nci.nih.gov Features a directory of genetic counselors and other experts on genetic risks for cancer. National Organization for Rare Disorders (NORD) www.pcnet.com/~orphan Offers a searchable database, lists of member organizations, local and regional development programs and online newsletter. ResourceLink members.aol.com/nsgcweb/rlhome.htm Consumers can search by state/city for genetic counselors. Areas of expertise are listed. Also indicates whether individual counselors are willing to speak with students interested in the profession. Maintained by the National Society of Genetic Counselors. Office of Rare Diseases, National Institutes of Health rarediseases.info.nih.gov/or Information about rare diseases and ongoing research studies for consumers, care givers, healthcare providers and biomedical researchers. Full information broken down for Patients & the Public, Health Care Providers and Research Investigators. SouthEastern Regional Genetics Group www.cc.emory.edu/PEDIATRICS/sergg/sergg.htm This regional genetic support group offers information about upcoming meetings, an online newsletter and offsite links, plus a searchable cytogenetic database of chromosomal abnormalities. The Eunice Kennedy Shriver Center for Mental Retardation www.shriver.org The Shriver Center was founded to answer questions about human development and to help children and adults with developmental disabilities reach their fullest potential. This site offers information about Shriver's research divisions, plus community and family services and links to other disability-related resources. The National Breast Cancer Coalition www.breastcancer.net Provides a linked list of Internet-based resources on the prevention, detection, and treatment of breast cancer. Includes a newsroom with breast cancer-related news and medical developments. Viewers can subscribe to a daily newsletter for updates. Tourette Syndrome Association, Inc. tsa.mgh.harvard.edu Provides Tourette syndrome FAQs and glossary, medical and scientific information, plus a TS chat room and discussion bulletin board through Massachusetts General Hospital. Y-ME National Breast Cancer Organization www.y-me.org Thorough resources and information about breast cancer for patients, survivors and their families, including suggested reading and FAQs, plus specific areas for men, single women, kids and people whose partners have breast cancer. Provides contact information for local chapters of Y-ME. Back to list of links