Professional Resources Alliance of Genetic Support Groups medhlp.netusa.net/www/agsg.htm The AGSG helps individuals and families with genetic disorders. A toll-free helpline is available for consumers and professionals looking for genetic services or support groups. American Association for the Advancement of Science www.aaas.org The Web site for this professional society, dedicated to public understanding of science and technology. American Medical Association www.ama-assn.org Offers a doctor-locator service, plus educational resources and news for medical professionals, including job openings. BioMedNet biomednet.com Worldwide club for biological and medical community. This is a password-protected site, but allows visitors. Clinical Genetic Centers www.kumc.edu/gec/prof/genecntr.html Provides a linked listing of genetic centers, clinics and departments by region, with links to other potential information sources, such as genetic professional societies and universities with genetic programs. Council of Regional Networks for Genetic Services (CORN) www.cc.emory.edu/PEDIATRICS/corn/corn.htm A national starting point for information about local and regional genetics services. Eastern Technology Council www.techcouncil.org Non-profit organization dedicated to networking and promoting technology oriented companies in Pennsylvania, New Jersey and Delaware. Includes a member directory that is searchable by category. Educational Resources, National Center for Genome Resources www.ncgr.org/gpi/grn/edures This page within the NCGR Web site provides educational resources, including links for announcements and educational tools and programs. NCGR also has a Continuing Medical Education program that aims to reach primary care physicians, medical specialists in genetics and genomics, residency program directors, medical school faculty, genetic counselors, nurse practitioners and physician assistants. Ethical, Legal and Societal Implications of the Human Genome Project www.ornl.gov/TechResources/ Human_Genome/resource/elsi.html Discussion of ethics and social issues in gene research. Contains articles, research information, background, etc. Long list of links organized by area of interest. Posted by Oak Ridge National Laboratories (Oak Ridge, Tennessee). Federation of American Societies for Experimental Biology (FASEB) www.faseb.org Features various resources, including career information for students interested in biology and related fields, including genetics. Genetics and Public Issues Program, National Center for Genome Resources www.ncgr.org/gpi Educational and informational resources for the public and medical professionals designed to help direct informed decisions about genetic information, technology and services and to support the need for policy development that arises from genetic research. Genetics Professional Societies www.faseb.org/genetics Links to six professional societies in the field of genetics, plus educational resources, information on becoming certified in genetics and a list of job openings. GenLine healthlinks.washington.edu/genline Up-to-date electronic textbook designed to help genetics professionals utilize genetic testing. Genome Database gdbwww.gdb.org Resources dealing with human gene mapping, including links to many molecular databases. Hosted by Johns Hopkins University School of Medicine. Genome Sequence Database, National Center for Genome Resources www.ncgr.org/gsdb An up-to-date collection of DNA sequences and related information for use by scientific researchers. Human Genome News Oak Ridge National Laboratory www.ornl.gov/meetings This site features selected conferences and workshops for genome researchers. Provided by the U.S. Department of Energy. Information for Genetic Professionals www.kumc.edu/instruction/medicine/ genetics/prof/geneprof.html Information on educational, clinical, medical/health-related and career aspects of the genetics profession. Includes a linked listing of genetics professional societies and other genetic organizations. Sponsored by University of Kansas Medical Center. Mountain States Regional Genetic Services Network www.ahsc.arizona.edu/~msrgsn/msrgsnhp.htm The Web site for this regional genetic support network provides resources for geneticists, health care practitioners, patients, families and their caregivers. Features an online newsletter and resource directory. National Society of Genetic Counselors members.aol.com/nsgcweb/nsgchome.htm Professional organization for genetic counselors. This page also features basic information about Genetic Counseling as a career. Best feature: NSGC ResourceLink, which allows viewers to search by state for genetic professionals who will serve as a resource for students or patients seeking further information. Office of Rare Diseases, National Institutes of Health http://rarediseases.info.nih.gov/ord Information about rare diseases and ongoing research studies for consumers, care givers, healthcare providers and biomedical researchers. Full information broken down for Patients & the Public, Health Care Providers and Research Investigators. ResourceLink members.aol.com/nsgcweb/rlhome.htm Consumers can search by state/city for genetic counselors. Areas of expertise are listed. Also indicates whether individual counselors are willing to speak with students interested in the profession. Maintained by the National Society of Genetic Counselors. SouthEastern Regional Genetics Group www.cc.emory.edu/PEDIATRICS/sergg/sergg.htm This regional genetic support group offers information about upcoming meetings, an online newsletter and offsite links, plus a searchable cytogenetic database of chromosomal abnormalities. The Gene Letter www.geneletter.org This online newsletter about genetics and public policy features regular columns on science, medicine, ethics, law and international developments. The site also offers a Student Corner and resources section. Back to list of links