General Alliance of Genetic Support Groups 35 Wisconsin Circle Suite 440 Chevy Chase, MD 20815 Phone: 800-336-4363 Council of Regional Networks for Genetic Services (CORN) Phone: 404-727-4549 Human Genome Management Information System Human Genome News Phone: 423-576-6669 Fax: 423-574-9888 E-mail: caseydk@ornl.gov March of Dimes Phone: 888-MO-DIMES National Center for Genome Resources Bibliography of Bioethics Phone: 505-982-7840 National Human Genome Research Institute Office of Communications Phone: 301-402-0911 Regional Genetics Support Networks Genetics Network of New York, Puerto Rico, Virgin Islands (GENES) Wadsworth Center Labs & Research Room E299 Empire State Plaza P.O. Box 509 Albany, NY 12201-0509 Phone: 518 474-7148 Fax: 518 473-1733 Great Lakes Regional Genetics Group (GLaRGG) Waisman Center, Room 328 University of Wisconsin-Madison 1500 Highland Avenue Madison, WI 53705-2280 Phone: 608-265-2907 Fax: 608-263-3496 E-mail: elbaum@waisman.wisc.edu Great Plains Genetics Service Network (GPGSN) University of Iowa Iowa City, IA 52242 Phone: 319-356-4860 Fax: 319-356-3347 e-mail: Dolores-Nesbitt@uiowa.edu Mid-Atlantic Regional Human Genetics Network (MARHGN) 260 South Broad Street Suite 1900 Philadelphia, PA 19102-3865 Phone: 215-985-6760 Fax: 215-985-6763 E-mail: marhgn1@aol.com Mountain States Regional Genetic Services Network (MSRGSN) Colorado Department of Health FCHS-MAS-A4 4300 Cherry Creek Drive South Denver, CO 80222-1530 Phone: 303-692-2423 Fax: 303-782-5576 E-mail: joyce.hooker@state.co.us New England Regional Genetics Group (NERGG) P.O. Box 670 Mt. Desert, ME 04660 Phone: 207-288-2704 Fax: 207-288-2705 E-mail: 76363.3114@compuserve.com Pacific Northwest Regional Genetics Group (PacNoRGG) CDRC - Clinical Services Building 901 E. 18th Avenue Eugene, OR 97403-5254 Phone: 503-346-2610 Fax: 503-346-5844 E-mail: kerry_silvey@ccmail.uoregon.edu Pacific Southwest Regional Genetics Network (PSRGN) California Department of Health Services 2151 Berkeley Way Annex 4 Berkeley, CA 94704 Phone: 510-540-2852 Fax: 510-540-2095 E-mail: pcohen@genetic.dhs.cahwnet.gov Southeastern Regional Genetics Group (SERGG) Emory University Pediatrics/Medical Genetics 2040 Ridgewood Drive Atlanta, GA 30322 Phone: 404-727-5844 Fax: 404-727-5783 E-mail: mrl@rw.ped.emory.edu Texas Genetics Network (TEXGENE) Bureau of Women & Children Texas Department of Health 1100 West 49th Street Austin, TX 78756-3199 Phone: 512-458-7111 Fax: 512-458-7421 E-mail: jlivingston@wc1.tdh.state.tx.us Genetic Disease Resources Alzheimer's Disease Alzheimer's Association Phone: 800-272-3900 Benjamin B. Green-Field National Alzheimer's Library and Resource Center Phone: 312-355-9602 Long Island Alzheimer's Foundation Phone: 516-869-9627 Cancer American Cancer Society Phone: 800-ACS-2345 Gilda Radner Familial Ovarian Cancer Registry, Roswell Park Cancer Institute Phone: 800-682-7426 Gynecologic Cancer Foundation Phone: 800-444-4441 National Alliance of Breast Cancer Organizations (NABCO) Phone: 212-719-0154 National Breast Cancer Coalition Phone: 202-296-7477 National Cancer Institute International Cancer Information Center Phone: 800-4-CANCER National Coalition for Cancer Survivorship Phone: 301-650-8868 Susan G. Komen Foundation Phone: 800-IM-AWARE Y-Me National Organization for Breast Cancer Information and Support Phone: 800-221-2141 YWCA Encore Plus Program Phone: 800-95-E-PLUS Cystic Fibrosis Cystic Fibrosis Foundation Phone: 800-FIGHT-CF Cystic Fibrosis Research, Inc. Phone: 415-856-0546 Heart Disease American Heart Association Phone: 800-AHA-USA1 Genetics Professional Societies American Board of Medical Genetics (ABMG) and American Board of Genetic Counselors (ABGC) Phone: 301-571-1825 Fax: 301-530-7079 9650 Rockville Pike Bethesda, MD 20814-3889 E-mail: srobinson@acmg.faseb.org National Society of Genetic Counselors (NSGC) Phone: 903-872-7608 233 Canterbury Drive Wallingford, PA 19086 E-mail: nsgc@aol.com